Archive | February, 2013

Because of Daisy

17 Feb

daisy

A bald-headed, freckled-faced girl named Daisy died in her sleep after being sick for a very long time. She was at home, surrounded by her loving family, and she felt no pain. But she died, and I must say that I’m so very weary of hearing of yet another family’s tragedy and loss. I’m sick and tired of children dying from cancer.

Not again, is all I can think. How can it be that another sweet, funny and adorable child has died? Why was there no miracle this time?

I’ve always believed that a positive attitude is beneficial to one’s well-being and that our life experiences are never random or fortuitous. I truly believe that what we experience here on this earth is revealed in order to teach us something essential that we’re meant to learn. I’ve discovered these fundamental lessons are usually about love.

When my own daughter, Isa was diagnosed with leukemia, an incalculable transformation took place in my life.  I saw first-hand the astounding and unquestionable shifts in consciousness that came to pass in our family, friends, and even our community during our struggle with Isa’s cancer. Love was always the main component.

I see these miraculous changes have also occurred in Daisy’s family and in the huge number of people who knew and loved her—even strangers who’ve only heard of her fierce battle through her blog http://prayfordaisy.tumblr.com  or on Facebook.

I know Daisy’s family carries the strong faith that she’s all right now and I believe this, too. But from what I’ve seen over the past five years since I first became a part of the pediatric cancer world, the pain and hurt is only just beginning for them. Every time I think about her mama and daddy not being able to hold their precious Daisy in their arms, my heart breaks a little more.

When I think about what Daisy’s family has faced and what they’ll continue to face in the coming days, months and years, an infinitesimal part of their burden becomes mine and it hurts deeply.

Yet, I am grateful.

I’m grateful because each time a child dies from cancer, I’m reminded that by some small shred of grace that was bestowed upon me and my family, my daughter is still here, and I’m blessed with the chance to watch her grow up.  I will never have enough words to express my extreme gratitude for this miracle. I only wish that Daisy’s parents had been able to experience this miracle, too.

Yes, Daisy suffered and ultimately died, and we all know that this is the worst thing that could ever happen to a family. Yet, because of Daisy, we are changed forever. Because of Daisy, we can appreciate the blessings we have in our lives. Because of Daisy, our love and compassion for others keeps growing and expanding and filling up the universe.  I believe that this understanding of love is one of the greatest lessons we could ever learn. This kind of love is the real miracle.

Bless her little heart,  Daisy taught us well.

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Gillian’s Heart

14 Feb

Today would have been Gillian’s 17th birthday. I’m re-posting this to honor her memory.

Allegro non tanto

Right after my daughter Isa’s leukemia diagnosis, I felt the hospital walls closing in on me. Being isolated in a ten by ten hospital room with a two year-old with cancer is not an ideal situation to say the least. The dread and worry I felt about my daughter’s illness caused me to feel suffocated, like I was wearing a belt around my chest which would cinch tighter each time she cried out in pain, vomited, or spiked another high fever.

Isa had become restless and bored being cooped up in the room. We’d already watched enough Wonder Pets and Sponge Bob to last us a lifetime, so it was up to me to come up with new ideas to entertain a two-year old with an I.V. line tethered to her chest. So I colored, I painted, I read stories, and I played endless games with finger puppets—I’m ashamed to…

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